Together Even Stronger, a conference for those affected by myotubular and centronuclear myopathies, their families, doctors and carers, took place in London on 14 and 15 July 2018. The bilingual (German and English) family conference was jointly hosted by The Myotubular Trust and ZNM – zusammen stark e. V. and provided an opportunity to:
- meet other families
- listen to renowned researchers
- get to hear about ways to manage the condition
- hear about trials and studies
Presentation from the conference can now be found on the Myotubular Trust and ZNM – zusammen stark e. V. websites.