Our friends at Myotubular Trust have places on offer in several fundraising events in 2020. As there is no public funding available to fund research for centronuclear and myotubular myopathy, the Trust rely heavily on people taking part in these events and the support of the networks of those affected by the condition.
Given the rarity of centronuclear and myotubular myopathy, this network is relatively small but the funds raised by supporters to date has made a huge difference in the journey to finding a treatment for the conditions, whether it’s contributing to Ana Buj Bello’s work on gene therapy, Jocelyn Laporte’s work on DNM2 down regulation, Jim Dowling’s pre-clinical work on re-purposing tamoxifen for x-linked myotubular myopathy, or going toward the next grant round. You can see what a difference a small army of supporters can make below.
If you, or someone you know, would like any further information about any of the events shown on this page, please email Myotubular Trust.
- The Vitality Big Half: Sunday 1 March 2020
- Great Manchester run: Sunday 24 May 2020
- Vitality London 10K run: Monday 25 May 2020
- Prudential RideLondon: Sunday 16 August 2020
- Swim Serpentine: 12 September 2020
- Ultra Challenge: Various dates and locations
- Hope Walks: Dates and locations to be confirmed
Or if you prefer, you can organise your own event. See the ‘Fundraising News’ page on the Myotubular Trust website for more information.
Please note: every penny raised by supporters goes into research, as the Myotubular Trust raise the running costs of the charity separately
centronuclear.org.uk 