For the latest news about centronuclear and myotubular myopathy around the world please visit the latest news page.
The Information Point produces an e-newsletter called Our World twice a year. Stories from past issues of Our World can be found below.
If you would like to submit some news for inclusion in a future issue of Our World or you would like to be added to our mailing list to receive copies when these are published, please get in touch.
For media coverage about the Information Point please visit the press page on this website.