The next European centronuclear and myotubular myopathy family conference will take place in Bad Nauheim, near Frankfurt from 21 – 24 May 2020. The event will offer workshops, lectures with simultaneous translation, a children’s programme and more.For further information and to register, visit any of the websites listed below.
- Zusammenstark (Germany)
- Myotubular Trust (UK)
- Pequeños Superhéroes (Spain)
- F.I.M.M. – Famiglie Italiane Miopatie Miotubulari e Centronucleari MTM-CNM (Italy)
- Fundacja Oswoic Miopatie (Poland)
- RYR1-Foundation (USA)