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- With illness identified, Pine Brook family looking to help others, Montville Patch, 19 December 2012
- Boston Children’s Hospital DNA contest brings hope, The Boston Globe, 7 November 2012
- Researchers solve the mystery of child’s illness, Time, 7 November 2012
- What’s making Adam sick? A contest to sequence three kids’ genomes, Time, 6 November 2012
- Disabled Middlesbrough teen told he may have to prove he is unfit to work, gazettelive.co.uk, 26 September 2012
- Race effort will raise money for the Myotubular Trust, 23 September 2012, Telegraph and Argus
- Paralyzed UK boy on life support from birth, told to prove disability, 22 September 2012, What’s On Ningbo
- Memorial fireworks booth to benefit muscular disease group, mynews3.com, 28 June 2012
- Eagle Riders planning benefit cycle ride, Daily Journal, 13 June 2012
- Rolling into summer with Kyle, Champlain Valley Voice, 12 June 2012
- Northeast Arkansas student goes to school via robot, arkansamatters.com, 17 May 2012
- Student with rare illness attends normal classes thanks to a telepresence robot, pcworld.com, 17 May 2012
- Boy attends school with his virtual representative, ubergizmo.com. 16 May 2012
- School buys telepresence robot to help sick student, CNET News, 15 May 2012
- Student with rare illness will use robot to attend school, KLTV, 15 May 2012
- Ponte Vedra Beach: Joseph Paul off to international science fair, The St. Augustine Record, 12 May 2012
- Local family competes for wheelchair accessible van, WLFI.com, 18 April 2012
- UT students build ramp for special needs child, WBIR.com, 17 April 2012
- Greensboro Baby With Rare Muscular Disease Leaves Hospital, digtriad.com, 17 April 2012
- UT Students Design, Build Wheelchair Access for Home of Special Needs Child, Tennessee Today, 13 April 2012
- Baby’s Fight Puts Life Into Perspective, digtriad.com, 13 April 2012
- Find the strength to walk for Trust, Telegraph and Argus, 19 March 2012
- Tony Abbott’s visit a win for disabled, The Australian, 7 March 2012
- They’ll be wearing jeans for genes, NorthJersey.com, 24 February 2012
- Fundraiser to help West Haven boy with genetic disorder, Standard-Examiner, 23 February 2012
- Anything for a Friend, abc4.com, 22 February 2012
- Family upset insurance co. will force them onto taxpayers’ dime, KATU.com, 16 February 2012
- Chester Woman’s sunflower quest for rare muscular disease, The Flintshire Chronicle, 9 February 2012
- 100% chance of being loved, National Right to Live, 3 February 2012
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