Together Even Stronger, a conference for those affected by myotubular and centronuclear myopathies, their families, doctors and carers, will take place in London on 14 and 15 July 2018. The bilingual (German and English) family conference will be jointly hosted by The Myotubular Trust and ZNM – zusammen stark e. V. and will provide an opportunity to:
- meet other families
- listen to renowned researchers
- get to hear about ways to manage the condition
- hear about trials and studies
Further information and an outline programme can now be found on the Myotubular Trust and ZNM – zusammen stark e. V. websites.