I am Toni, daughter of Michael and Diane and sister of Rachel. I was born in Luton, Bedfordshire but have lived most of my life in Chester. I am an employee, a student and the founder of the Information Point for Centronuclear and Myotubular Myopathy.

If you have never heard of Centronuclear or Myotubular Myopathy, I would love for you to visit the Information Point. My father and I were diagnosed with this rare neuromuscular condition in 1998 and I subsequently set up the Information Point to provide support, information and awareness to others affected by the condition.

I enjoy reading, music and films, love chocolate, my garden and anything creative and have an interest in my family history.

The imagery used on these pages was created by Stephanie Pui-Mun Law of Shadowscapes. Please visit Stephanie's gallery website for more of her work.

Open University | Family History

Find me at Bebo and Facebook and Bookcrossing