Resources

The information found on these pages has been gathered as areas of possible interest. The Information Point has no control over the content of the information featured on these websites.

Centronculear / Myotubular Myopathy Specific Resources

• Joshua Frase Foundation
• Myotubular Trust
• MTMX (German Language website)
• Myotubular Myopathy Resource Group

Other Resources

• Assistive Technology
• Bereavement
• Books, Leaflets and Other Publications
• Disability Advice
• Employment and Training
• Equipment and Suppliers
• Event Resources
• Genes and Genetics
• Government Initiatives
• Grants
• Neurological Centres
• Other Myopathy Websites
• Out and About
• Someone to Talk to
• Terminology
• Worldwide Muscular Dystrophy Associations