Events
This page is available for event organisers worldwide to promote their event free of charge, no matter how big or small. If you would like to have an event featured on this page, please email the details using the links on this website.
Muscular Dystrophy Campaign Conference
Date: 18 September 2010
Further Information: The Muscular Dystrophy Campaign's National Conference takes place in Birmingham this September. For further information, visit the Muscular Dystrophy Campaign website.
Lets's Laugh for Josiah
Date: 4 September 2010
Venue: Riverstage, Tewantin Lion's Park, Noosaville
Further Information:
The 'Let's Laugh For Josiah' Benefit concert is a family fun day with all proceeds going towards the purchase of a purpose built wheelchair car so Josiah who has MTM and his family can travel around a little easier.
See the Let's Laugh for Josiah Benefit page on Facebook for more details.
The Loughlin Boys Cup 5 A - Side Tournament
Date: 24 July 2010
Venue: Galway Hibernians Pitch, Headford Road, Galway
Further Information:
5 a side tournament in aid of the Myotubular Trust in memory of Nathan, Sean and Alex Loughlin. The one day event will be held at Galway Hibernians pitch, followed by a presentation night in Crowes bar to include auction, raffle, dj and finger food.
The fee for taking part is 70 euro - anyone wishing to compete should contact Crowes bar.
London 10k
Date: 11 July 2010
Time: 10 a.m.
Further Information:
2010 marks the fifth year that supporters of the Myotubular Trust will be taking part in this ASICS charity run which attracts thousands of runners from around the world.
In just four years, this event has raised an amazing £148,000 for the Myotubular Trust. Over 190 wonderful people have run on behalf of MTT, many having run more than once! The amount that has been raised equates to a quarter of the total amount the Trust has raised to date.
Kyle's Race
Date: 23 May 2010
Time: 11.00 a.m., race begins at 12.00 p.m.
End time: 2 - 3.00 p.m. after post-race picnic and raffle.
Further Information:
This 5k run / walk will take place at Vergennes High School to raise money to benefit Kyle Grant who is a student at the school who has myotubular myopathy and the Joshua Frase Foundation. Gifts and prizes from local businesses, raffle ticket included with registration fee and / or donation, free food for participants from local farms and restaurants, event organic cotton t-shirt included with registration fee and / or donation
- $20.00 for individuals
- $10.00 for students.
The event is being hosted by imsuperb.com who are donating 100% of profits from anyone who signs up for a membership with them using the promo code 'Kyle's Race'.
Email kylesrace@gmail.com for group or family rates
-12 and under free or with donation. Family / group discounts available upon request.
Pre-registration is encouraged.
20 Mile Thames Walk
Date: 8 May 2010
Further Information:
The Myotubular Trust are holding their third 20 mile Thames Towpath Walk on Saturday 8th May 2010. This is an event which can be enjoyed by all ages and is a great day out for all the family.
In its first two years the walk has been a huge success and raised in excess of £50,000 for the Myotubular Trust.
St Patricks Day Corn Beef Dinner
Date: 13 March 2010 at 4 p.m.
Location: Aggie's Village Restaurant, 107 Main Street, Ivoryton
Further Information:
In honour of Aggie's grandson Patrick M Bowers II. Homemade desserts, raffle prizes and entertainment. All proceeds to benefit the Joshua Frase Foundation.
Unable to make this event? Donations to support the Joshua Frase Foundation will be accepted. Cheques should be made payable to the Joshua Frase Foundation.
Rare Diseases Day
Date: 28 February 2010
Further Information:
Annual, awareness-raising event co-ordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the national level to raise awareness with policy makers and the public of rare diseases and of their impact on patients' lives.
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