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Joshua Frase Foundation During September and October 2006 the Joshua Frase Foundation hosted its first ever educational teleconferences, believed to be the first free, open-access conferences ever held on Centronuclear and Myotubular Myopathy. Although designed primarily for families affected by MTM / CNM they were also open to physicians, researchers, health care professionals and others who wanted to learn more about the disease. Read more about the Teleconferences.
17 September 2006 Speaker:
Dr Alan Beggs PhD, The Beggs Laboratory
Topic: Current Issues in Centronuclear / Myotubular Myopathy Research  24 September 2006 Speaker: Elizabeth Taylor, M.S., Genetic Counsellor and Research Study Coordinator at Children’s Hosptal Boston Topic:'The Genetics of Centronuclear / Myotubular Myopathy: What we Know and What we Think we Know.' 15 October 2006 Speaker: Dr John Bach MD, Professor of Physical Medicine and Rehabilitation, New Jersey Medical School Topic: Prevention of medical complications in Myotubular / Centronuclear Myopathy.
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