For the latest news about centronuclear and myotubular myopathy around the world please visit the latest news page.

Our World

The Information Point produces an e-newsletter called Our World twice a year. The latest issue can be found below.

Stories from past issues of Our World can be found below.

If you would like to submit some news for inclusion in a future issue of Our World or you would like to be added to our mailing list to receive copies when these are published, please get in touch.


For media coverage about the Information Point please visit the press page on this website.

About Donate NewsOur history Home Share a story Research Resources The Big Sunflower Project Home