A roll in the woods

Sarah Foye

The Information Point for Centronuclear and Myotubular Myopathy

AJ with mum Sarah and dad Pat.My son, AJ, age 12, has centronuclear myopathy caused by a mutation in the Titin gene. AJ was recently required to read a non-fiction book as part of his language arts class in 6th grade. He chose the book, 'A Walk in the Woods' by Bill Bryson. As a result of AJ's condition, he uses a wheelchair for long distances as he tires easily and since holding books for long periods of reading can tire AJ, he often chooses to listen to the audio version. One benefit of him listening to books instead of reading them is that we can enjoy them together.

'A Walk in the Woods' is a hilarious tale of one man's attempt to walk the Appalachian Trail. The Appalachian Trail is one of the longest continuously marked footpaths in the world, measuring roughly 2,180 miles in length. The Trail is located in the United States goes through fourteen states along the crests and valleys of the Appalachian mountain range from the southern terminus at Springer Mountain, Georgia, to the Trail's northern terminus at Katahdin, Maine.

Appalachian TrailThis amusing story opened up a world not generally revealed to people with physical disabilities and after learning about the Appalachian Trail through the book, we realized that a portion of it runs through our home state of New Jersey. After some research, we also discovered that a portion of the New Jersey Appalachian Trail has a wheelchair accessible boardwalk, so one beautiful fall afternoon we took a drive to that corner of our state and discovered a glimpse of the world described by Bill Bryson. We joked with people who passed us by that we pretty worn out after traveling all the way up from Georgia.

We discovered also that there are other sections of the Appalachian Trail that are wheelchair accessible, such as the Appalachian Trail on Bear Mountain and the Appalachian Trail in Vermont. Also that the United States National Park Service makes an effort to make many national parks wheelchair accessible.


So, that's one thing AJ crossed off his bucket list: hiking on the Appalachian Trail. With some advanced research, many trails may be open to you, too. Happy trails.

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