Latest News
Kenny's Kids Fighting Muscular Dystropy
: CBS 11, 12 March 2010
Muscle Disorder Treatment Advances to Real Lab Trial
: The Journal of New England Technology, 11 February 2010
Jacksonville Family Finds Support in Hollywood Movie
: FirstCoastNews.com, 22 January 2010
Georgina Fowler's Ceramics at Tidal Wave Gallery
: Hereford Times, 26 November 2009
Meet Scott Crane, The Determinator
: nbchicago.com, 26 November 2009
Fundraiser in memory of Abbie is huge success
: Dublin People, 18 November 2009
Kash Maughan Overcomes Rare Condition
: Utah Gives, 1 November 2009
TCS Fire Safety Services organise sponsored walk to raise money for electicity bill
: The Northern Echo, 6 November 2009
Tragic Abbie, who died in class, is motivation for new fundraiser
: Herald.ie, 20 October 2009
Electricity standing order to rise to £147
: The Northern Echo, 15 October 2009
Deposit scheme comes to rescue of Rugby house buyer
: Easier.com, 15 September 2009
A Tea-riffic Idea for an Exhibition at Tidal Wave Gallery
: Hereford Times, 7 August 2009
The Fight - and Hope - Continu
e: myCentralJersey.com, 28 July 2009
Former NFL Lineman Paul Frase to Utilise Video Conferencing to Speak About Son's Rare Muscular Disorder to Families Worldwide
: SOA World Magazine, 9 July 2009
Seeking Experts in Standard of Care for Nemaline and other Congenital Myopathies
: TREAT-NMD, 3 July 2009
Enderlin Alumni Shares his Life Through Book of Poems
: The Enderlin Independent, 1 July 2009
Mom Suspected Neglect by Nursing Assistant -- So She Set About Trying to Prove it
: Pioneer Press, 8 June 2009
Health Aide Accused of Neglecting Disabled Brothers
: Pioneer Press, 3 June 2009
Momentus Day for Reece
: Wigan Today, 13 May 2009
Boy's Life is Put at Risk by Fly-Tippers
: Sunday Sun, 3 May 2009
Our Boy is Being Robbed
: Manchester Evening News, 20 April 2009
Gateway to the World
: MDA Quest, Volume 16, 2009
Lasting reminders of a too-short life
: Chicago Tribune, 4 January 2009
Yogathon benefits Montville boy
: Daily Record, 14 December 2008
Expression through Art for Children with Special Needs
: Daily Record, 25 November 2008
Grave illnesses targeted
: Windsor Star, 14 November 2008
The many faces of caregiving
: Richmond Times Dispatch, 5 November 2008
Being casual for a day is seriously good for fighting genetic disorders
: Coventry Telegraph, 15 October 2008
How Trust is helping Jennie and baby Nathaniel
: Coventry Telegraph, 15 October 2008
Lancing baby remembered in charity run
: Worthing Herald, 24 September 2008
Raising £500 for Little Aaron's Cause
: Halifax and Calderdale Evening Courier, 19 August 2008
Photos help parents hold onto the only memory of their newborns
: Ventura County Star, 17 August 2008
Yard sale to aid in fighting disease
: South Maryland Newspapers Online, 30 July 2008
Banger off on 10,000 mile journey
: Bucks Free Press, 16 July 2008
Life support boy's cash snatched by British Gas
: Sunday Sun: 6 July 2008
Rachel's Run to Fight Families Rare Disease
: Chester Chronicle, 16 May 2008