HomeOur HistoryNewslettersShare a StoryFrequently Asked QuestionsPatient RegistryResearchDiary Dates


What's New
Talk:  Chat Rooms and Message Boards
Resources
Accomplishments
In Memory
Shop Online and Help Raise Funds for Research
Our Friends
Make a Donation


Diary Dates - 2007

If you would like to have an event featured on this page, please contact us
using the link at the bottom of this page.

USA Flag Yogathon

Yogathon

Date: 1 December 2007

Location: The Oasis Wellness Center in Montville, New Jersey.

 

The Myotubular Trust Charity Auction and Dinner

Date: 2 November 2007

Location: The Mall Galleries, Pall Mall

View the auction catalogue (PDF 3.67 mb)

 

UK Flag Myotubular Trust Advertising Campaign

Myotubular Trust Advertisement

Date: October 2007 - December 2007

IPM - International Poster Management have adoped the Myotubular Trust as their charity of the year and are helping raise awareness of Myotubular Myopathy. A huge backlit billboard poster has been provided on Cromwell Road, London for 2 1/2 months. IPM are also helping with a poster campaign in nurseries across the UK and 100,000 sandwich bags in cafes and bars in London's City and West End, all free of charge.


Irish Hibernian Dance

Irish Dance Fundraisers:  Adam Foye, age 6 years(front). Back (left to right): Tommy and Janet Callinan, Sarah Foye, Jimmy O'Neill, and Patrick Foye.

Date and Time: 16 September 2007

Location: Kenilworth, New Jersey, USA


Muscular Dystrophy Campaign National Conference

Date: 15 September 2007

Location: Church House, Westminster, London, SW1

For further information visit the Muscular Dystrophy Campaign website


The Big Push

Date and Time: 15 - 22nd September 2007

A major new drive for awareness and fundraising from the Muscular Dystrophy Campaign. The Big Push will be a concentrated period of activity, pushing for better services and pushing the case for research funding as well as being a major fundraising push.


Family Conference Day

Date: 8th September 2007, 10 a.m. - 5 p.m.

Location: V and A Museum, South Kensington, London For further information visit the Myotubular Trust website.


Favourite Places

Artist Linda Fowler presenting paintings from the 'Favourite Places' calendar to the researchers and clinicians at the Myotubular Trust Family Conference Day

The first Myotubular Trust charity calendar, 'Favourite Places', was launched at the Myotubular Trust Family Conference day. To purchase a calendar, visit the Myotubular Trust website.

 


Shark Dive

Mark Fairhurst

Date: 31st August 2007
Location: Blue Planet Aquarium, Ellesmere Port

Mark Fairhurst will be diving with sharks to raise money for the Myotubular Trust. His grandson Reece has Myotubular Myopathy. To sponsor Mark's dive, visit the Myotubular Trust website.


Softball Tournament

Hope to Cure Softball Fundraiser, Pictured are Patrick, Adam, and Sarah Foye, with event organiser Susan Priore.

Date: 18 - 19 August 2007

Location: Morris County, New Jersey, USA

 

CNM / MTM Family Get Together

Date and Time: 8th July 2007, 12 - 4 p.m.

Read the New Jersey invite (PDF)

Other events took place in Ohio, Oregan and Florida.


British 10k London Run

Date: 1st July 2007

London 10k Runners

Read more and view images at the Myotubular Trust website.

The Cumpana Fun Run

Date: 1st July 2007

Romanian Flag

Read more and view images at the Myotubular Trust website.

Date: 22nd - 24th June 2007

Emily Eavis and Misty Buckley with the World's Longest Bunting Line

World's Longest Bunting Line displayed in 'The Park' at Glastonbury Music Festival.


Muscle Interest Group Meeting

Date and Time:14 May 2007, 10.30 a.m. - 4 p.m.

Venue: Birmingham Heartlands Hospital Education Centre.

Topic: Updates on the Myotubular Myopathies.


Teleconference

Date and Time: 22 April 2007, 4.00 p.m. - 5.00 p.m.

Speaker: Lou Sapporrito, Respiratory Therapist.

Topic: The cough assist machine for use in patients with neuromuscular disease.


Family Event

Date and Time: Friday, 6 April 2007, 9.30 - 11.00 a.m.

Venue: The Boston Harbour Hotel, 70 Rowes Wharf, Boston, MA.

Pat and Sarah Foye visit the Beggs Laboratory at Children's Hospital Boston with Shannon Mashinchi and Connie Guinn

Family event including a short presentation by Dr Patrick Foye on Centronuclear / Myotubular Myopathy and a discussion on current research by Dr Alan Beggs.

View the Presentation of Dr Patrick Foye (PowerPoint 4.73 mb).

USA Flag Joshua Frase Foundation Muscle Dream Team Gala Fundraiser.

Date: and Time: 5 April 2007, 6 p.m.

Venue: The Boston Harbour Hotel

Joshua Frase Foundation Muscle Dream Team hosted, NFL stars and legends, musical celebrities and business leaders, for a night of music, dancing, cocktails, hors d’oeuvres and a live and silent auction.

For further information about this event, visit the Joshua Frase Foundation website.

Myotubular TrustMuscular Dystrophy Campaign Joshua Frase Foundation Harvard Congenital Myopathy Research Programme

Contact a Family

Web Design by Toni

Translate This Page Guestbook Guestmap Disclaimer Contact Us