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Date: 11 July 2010 Further Information: 2010 marks the fifth year that supporters of the Myotubular Trust will be taking part in this ASICS charity run which attracts thousands of runners from around the world. In just four years, this event has raised an amazing £148,000 for the Myotubular Trust. Over 190 wonderful people have run on behalf of MTT, many having run more than once! The amount that has been raised equates to a quarter of the total amount the Trust has raised to date.
Date: 23 May 2010 Further Information: Fundraiser to benefit the Joshua Frase Foundation.
Date: 8 May 2010 Further Information: The Myotubular Trust are holding their third 20 mile Thames Towpath Walk on Saturday 8th May 2010. This is an event which can be enjoyed by all ages and is a great day out for all the family. In its first two years the walk has been a huge success and raised in excess of £50,000 for the Myotubular Trust.
Date: 13 March 2010 at 4 p.m. Location: Aggie's Village Restaurant, 107 Main Street, Ivoryton Further Information: In honour of Aggie's grandson Patrick M Bowers II. Homemade desserts, raffle prizes and entertainment. All proceeds to benefit the Joshua Frase Foundation. Unable to make this event? Donations to support the Joshua Frase Foundation will be accepted. Cheques should be made payable to the Joshua Frase Foundation.
Date: 28 February 2009 Further Information: Event to raise awareness with policy makers and the public of rare diseases and of their impact on patients' lives.
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