What's New

6 October 2007

Udated the Events page with information about the
Myotubular Trust Family Conference Day and the 'Favourite Places' calendar.

22 September 2007

Added the launch of 'Favourite Places' to the Events page

Added A Range of Outcomes: Taking a Closer Look at Myotublar Myopathy
(from the September 2007 issue of Quest magazine) to the Resource Gallery

Added Patrick to the In Memory page

11 September 2007

Added the UnLtd Millenium Awards Scheme to the Acknowledgements page

20 August 2007

Updated Equipment and Suppliers Links

11 August 2007

Added August 2007 Newsletter

6 August 2007

Updated the Events page to include Muscular Dystrophy Campaign National Conference

31 July 2007

Updated the Website Accessibility Guide

29 July 2007

Updated links on the Equipment Suppliers page

24 July 2007

Updated the Events page to include Mark Fairhurst's Shark Dive

Updated Our History page

Added link to the Be Cause Awards

15 July 2007

Added link to Careplace

14 July 2007

Added Tom to the In Memory page

Added presentation by Dr Patrick Foye
from USA Family Event, April 2007 (PowerPoint 4.73 mb)

Updated the Events page

9 July 2007

Added Jack to the In Memory page

Added link to Jack's Birthday Wish Appeal

7 July 2007

Updated information about the Myotubular Trust Family Day

Updated the Events page:

Added link to photos of the London 10k

Added video of the London 10k

Updated information about the Romanian 10k

20 June 2007

Updated information about The Cumpana Fun Run

19 June 2007

Added Sam 'Sammy' Kowalski to the In Memory page

Updated information about the World's Longest Bunting line at
the Glastonbury Music Festival on the Events page

18 June 2007

Added Keely's story

14 June 2007

Updated the Events page

16 May 2007

Added link to Cough Assist Teleconference

15 May 2007

Added 'The Smugglers of Thurleston Beach' to Zak's web page

11 May 2007

Added information about the Muscle Interest Group Meeting (May 2007) to the Events page

24 April 2007

Researchers discover new MTM Gene:
Added link to Myotubular Trust Research pages

23 April 2007

Added links to Genetic Interest Group's Publications on
X-Linked, Autosomal Recessive and Autosomal Dominant inheritance patterns

21 April 2007

Added link to A Guide to Genetic Testing in the NHS

9 April 2007

Updated link to Boston Children's Hospital Online Giving page

6 April 2007

Updated Teleconference information on the Events page

Added link to Mito Action to the Links web pages

Added link to the Community Champions Fund and National Council for Voluntary Organisations

Added link to Letterbox Library to the Equipment and Suppliers page

25 March 2007

Updated the Donations page

24 March 2007

Updated the Acknowledgements page

Added information about the 'Big Push' to the Events page

Added link to Fathers Direct

Added link to
Being a Father to a Child With Disabilities,
A Report by the Social Care Institute for Excellence

23 March 2007

Updated Google News Alerts

Added link to DirectgovKids

21 March 2007

Added link to Bees Knees Wedding Cars to Our Friends page

16 March 2007

Added March 2007 Newsletter

15 March 2007

Updated the Events page

11 March 2007

Added link to British Society for Gene Therapy

1 March 2007

Added Maddux's story

26 February 2007

Added link to Disability Alliance

23 February 2007

Uploaded revised website template design including two new pages - Events and Newsletters.

17 February 2007

Added link to Ableize

Added link to Medical Research Council

15 February 2007

Added link to Now I Lay Me Down to Sleep

Added link to Expressions Photography

11 February 2007

Added link to Makaton

4 February 2007

Added Dillon and Carter's story

2 February 2007

Added link to Treat-NMD

Added link to Kidzaware

Added link to the Office for Disability Issues

26 January 2007

Added link to MTMX - German Language Myotubular Myopathy Website

Added link to
Beggs Laboratory December 2005 Newsletter (PDF 1 mb)
and
Beggs Laboratory December 2006 Newsletter (PDF 4 mb)
to the Resource Gallery

Replaced image of Beggs Laboratory on the Acknowledgements webpages

22 January 2007

Added photos of Dillon and Carter to the In Memory pages

21 January 2007

Updated the Personal Experiences web page and added Lindsey's Story

Added links to 'Everybodys Different, Nobodys Perfect' and 'Listen to Our Stories'

Updated and re-organised the Links to Other Sites web page

20 January 2007

Updated Equipment and Suppliers page

Added link to AFM (French Muscular Dystrophy Association)

Added link to Europrean Muscle Development Network (MYORES)

Added link to Institute of Myology

Added link to Abstract and Digital Designs

14 January 2007

Added the Myotubular Trust leaflet
'When? What? Why? How?' (PDF 841 kb)

Added link to Teleconference Summary of 24th September 2006

1 January 2007

Added links to:

Council for Disabled Children

Early Support

Every Disabled Child Matters

Family Fund

Shared Care Network

Surestart

SWAN (Syndromes Without a Name)

Website Accessibility Guide

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