During September and October 2006 the Joshua Frase Foundation hosted its first ever educational teleconferences, believed to be the first free, open-access conferences ever held on Centronuclear and Myotubular Myopathy. Although designed primarily for families affected by MTM / CNM they were also open to physicians, researchers, health care professionals and others who wanted to learn more about the disease.
Read More About the Teleconferences.
17 September 2006
Speaker: Dr Alan Beggs PhD,
The Beggs Laboratory
Topic:
Current Issues in Centronuclear / Myotubular Myopathy Research
Listen to the Teleconference.
24 September 2006
Speaker:
Elizabeth Taylor, M.S.
Genetic Counsellor and Research Study Coordinator at Children’s Hospital Boston
Topic:
'The Genetics of Centronuclear / Myotubular Myopathy
What we Know and What we Think we Know.'
Download Teleconference Summary
15 October 2006
Speaker:
Dr John Bach MD
Professor of Physical Medicine and Rehabilitation, New Jersey Medical School
Prevention of medical complications in Myotubular / Centronuclear Myopathy.
