Sharing stories at the Information Point not only gives much needed information but at times, gives hope to those that may have lost it - we are grateful to everyone who has so generously submitted their story here or allowed us to link to their website.

If you would like to share your story, please contact us.

Coming to terms with a diagnosis can be a difficult and emotional time, both for those with the diagnosis and those who love them - visitors to this website may find the Muscular Dystrophy publication,
Everybodys Different, Nobodys Perfect and the Listen to Our Stories website of some help.