Events
Irish Hibernian Dance
Date and Time: 16 September 2007
Muscular Dystrophy Campaign National Conference
Date: 15 September 2007
Location: Church House, Westminster, London, SW1
For further information visit the Muscular Dystrophy Campaign website
The Big Push
Date and Time: 15 - 22nd September 2007
A major new drive for awareness and fundraising from the Muscular Dystrophy Campaign. The Big Push will be a concentrated period of activity, pushing for better services and pushing the case for research funding as well as being a major fundraising push.
Family Conference Day
Date: 8th September 2007, 10 a.m. - 5 p.m.
Location: V and A Museum, South Kensington, London
For further information visit the
Myotubular Trust website.
Date: 8th September 2007
Favourite Places
The first Myotubular Trust charity calendar, 'Favourite Places', was launched at the Myotubular Trust Family Conference day.
To purchase a calendar, visit the
Myotubular Trust website.
Shark Dive
Date: 31st August 2007
Location: Blue Planet Aquarium, Ellesmere Port
Mark Fairhurst will be diving with sharks to raise money for the Myotubular Trust.
His grandson Reece has Myotubular Myopathy.
To sponsor Mark's dive, visit the
Myotubular Trust website.
Softball Tournament
Date: 18 - 19 August 2007
CNM / MTM Family Get Together
Date and Time: 8th July 2007, 12 - 4 p.m.
Read the
New Jersey invite (PDF)
Other events took place in Ohio, Oregan and Florida.
British 10k London Run
Date: 1st July 2007
Read more and view images at the
Myotubular Trust website.
The Cumpana Fun Run
Date: 1st July 2007
Read more and view images at the Myotubular Trust website.
Glastonbury Music Festival
Date: 22nd - 24th June 2007
World's Longest Bunting Line displayed in
'The Park' at Glastonbury Music Festival.
Muscle Interest Group Meeting
Date and Time:14 May 2007, 10.30 a.m. - 4 p.m.
Venue: Birmingham Heartlands Hospital Education Centre.
Topic: Updates on the Myotubular Myopathies.
Teleconference
Date and Time: 22 April 2007, 4.00 p.m. - 5.00 p.m.
Speaker: Lou Sapporrito, Respiratory Therapist.
Topic: The cough assist machine for use in patients with neuromuscular disease.
Family Event
Date and Time: Friday, 6 April 2007, 9.30 - 11.00 a.m.
Venue: The Boston Harbour Hotel, 70 Rowes Wharf, Boston, MA.
Family event including a short presentation by Dr Patrick Foye on Centronuclear / Myotubular Myopathy and a discussion on current research by Dr Alan Beggs.
View the Presentation of Dr Patrick Foye (PowerPoint 4.73 mb).
Joshua Frase Foundation Muscle Dream Team Gala Fundraiser.
Date: and Time: 5 April 2007, 6 p.m.
Venue: The Boston Harbour Hotel
Joshua Frase Foundation Muscle Dream Team hosted, NFL stars and legends, musical celebrities and business leaders, for a night of music, dancing, cocktails, hors d’oeuvres and a live and silent auction.
For further information about this event, visit the Joshua Frase Foundation website.
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