Events

Teleconference

Date: 15 October 2006

Speaker: Dr John Bach MD, Professor of Physical Medicine and Rehabilitation,
New Jersey Medical School.

Topic: Prevention of medical complications in Myotubular / Centronuclear Myopathy.

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Teleconference

Date: 24 September 2006

Topic: 'The Genetics of Centronuclear / Myotubular Myopathy
What we Know and What we Think we Know.'

Speaker: Elizabeth Taylor, M.S.
Genetic Counsellor and Research Study Coordinator at Children’s Hospital Boston.

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Teleconference

Date:17 September 2006

Topic: Current Issues in Centronuclear / Myotubular Myopathy Research

Speaker: Dr Alan Beggs PhD, The Beggs Laboratory

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British 10k London Run

Date: 2nd July 2006

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